At the start of February 2017, I received an email from the Head of Patient and Family Services at the … Read More
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Dan JeffriesAcromegaly, Interview, pituitary, Rare DiseaseLeave a Comment
At the start of February 2017, I received an email from the Head of Patient and Family Services at the … Read More
Every child faces challenges at school. The first obstacle for me to overcome contained two of the most terrifying syllables in the English language: rugby.
For the first time in the school’s four-hundred-year history, a boy was exempt from playing rugby: and that boy was me. Doctors at the Eye Hospital felt that the vascular activity around my eye and brain was a serious enough issue that I shouldn’t engage in any contact sport. The fear was that this arteriovenous malformation (or ‘the worms’ as our family called them) could become damaged if I took a hit, and potentially cause bleeding in the brain. I think there were also concerns that somehow the syndrome could pass over to the other eye, or in some way damage the eye. I didn’t really understand — I just knew I would never experience the joy of a sticking my head between another boy’s legs.
Every child faces challenges at school. The first obstacle for me to overcome contained two of the most terrifying syllables in the English language: rugby.
For the first time in the school’s four-hundred-year history, a boy was exempt from playing rugby: and that boy was me. Doctors at the Eye Hospital felt that the vascular activity around my eye and brain was a serious enough issue that I shouldn’t engage in any contact sport. The fear was that this arteriovenous malformation (or ‘the worms’ as our family called them) could become damaged if I took a hit, and potentially cause bleeding in the brain. I think there were also concerns that somehow the syndrome could pass over to the other eye, or in some way damage the eye. I didn’t really understand — I just knew I would never experience the joy of a sticking my head between another boy’s legs.