Tag Archive

New Orleans Acromegaly Conference – 2019

Dan JeffriesApril 24, 2019Acromegaly, Advocacy, New Orleans, Rare Disease, Travel3 Comments

In March 2019 I was lucky enough to attend the International Acromegaly Conference in New Orleans. Here’s what went down in The Big Easy.

Ono Pharmaceuticals: Learning more about Acromegaly

Dan JeffriesFebruary 10, 2019Acromegaly, Advocacy, pharma, pituitary, Rare Disease2 Comments

It’s always an honour to be asked to share to experience and knowledge in Acromegaly. In January 2019 I spent the day at Ono Pharmaceuticals. Here’s what happened.

The Power of Photography to Raise Awareness of Acromegaly

Dan JeffriesOctober 31, 2018acromeglay, Advocacy, awareness, Canada, pituitaryLeave a Comment

When it comes to raising awareness, advocates use the tools then know best. For Santino Matrundola, it’s his camera.

2017: A Year in Review

Dan JeffriesDecember 30, 2017Acromegaly, Advocacy, cambridge, Canada, CRDN, Rare Disease, Travel, wyburn-mason syndrome2 Comments

Two continents, five thousand miles, four conferences, numerous new friends and a couple of nosebleeds. It’s been the best 2017 ever for Dan Jeffries. Find out why.