You are not alone

  • The Pituitary Foundation

    It is estimated that there are approximately 70,000 people with a pituitary condition in the United Kingdom. To meet the need for information and support The Pituitary Foundation was set up in 1994 and was subsequently registered as a charity in September 1996. The Pituitary Foundation is a national support and information organisation for pituitary patients, their families, friends and carers. They are the UK’s leading charity providing support to people affected by disorders of the pituitary gland such as Acromegaly, Cushing’s, Prolactinoma, Diabetes Insipidus and Hypopituitarism. Pituitary Foundation website

  • UK Acromegaly Facebook Group

    Got Acromegaly and based in the UK? This is the place for you. A group of like-minded and friendly people sharing the highs and lows of living with Acromegaly. Friendly and supportive, it’s a useful sounding board – especially if you’ve just been diagnosed. UK Acromegaly Facebook Group

  • Acromegaly Support Facebook Group

    The international support group on Facebook for those with Acromegaly, here yo can find a wealth of information and support from all over the world. You’ll often find the UK members in here too! Acromegaly Support Facebook Group

  • Wyburn-Mason syndrome Facebook Group

    Wih only 20 members, this is one of the more exclusive Facebook Groups. Setup by myself in October 2016, it is an invaluable resource to discover how Wyburn-Mason syndrome has affected each of us and the unique journey we have all taken. WMS Facebook Group

  • AVM Survivors Network

    A goldmine of information and discussion, the AVM Survivors Network is for anyone with an Atereovenous Malformation (AVM). With brilliant people at the helm and a wealth of useful guidance and support, this is a must for anyone recently diagnosed with an AVM. Visit Website

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