Me, Myself & Eye

A Unique and Hilarious Memoir About Living with Two Rare Medical Conditions Navigation
  • Book Content
      • Ch 1: Dan 1.0
      • Ch 2: Win Some, Lose Some
      • Ch 3: Eye of the Tiger
      • Ch 4: QEH: The Early Years
      • Ch 5: Best Friends and Bouncers
      • Ch 6: Girls and Stuff
      • Ch 7: Theatre, Shweetie!
      • Ch 8: Go East!
      • Ch 9: This Sentence is Twenty
      • Ch 11: Hello Creativity
      • Ch 13: Blind and Dumb
      • Ch 14: Demons/Angels
      • Ch 17: Lord of the Ring
      • Ch 18: OMG
      • Ch 19: Love
      • Ch 20: ATM
      • Ch 21: Blood and Tears
      • Ch 24: Rings, Fingers and Noses
      • Ch 25: Woof
      • Ch 27: Hallelujah
      • Ch 28: Pictures, Pains and Polyps
      • Ch 29: Echo
      • Ch 30: ‘I’m All In’
      • Ch 31: Showtime
      • Ch 32: Two Steps Forward…
      • Ch 34: Caught by the Fuzz
      • Ch 35: Eyes Right!
      • Ch 36: Hormones
      • Ch 38: Building Blocks
      • Ch 39: ‘After the Break…’
      • Ch 40: The Fear, The Fame
      • Ch 41: Teeth and Tribulations
      • Ch 42: The Book of Clips
      • Ch 43: Super Sharp Shooter
      • Ch 44: Water and Fire
      • Ch 45: Life’s Little Challenges
      • Ch 46: Highs and Lows
      • Ch 47: Heartbreak and Heartache
      • Ch 49: The Power of Words
      • Ch 50: So Long, Old Pal
      • Ch 52: 183%
      • Epilogue
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  • Blog
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  • Book Content
      • Ch 1: Dan 1.0
      • Ch 2: Win Some, Lose Some
      • Ch 3: Eye of the Tiger
      • Ch 4: QEH: The Early Years
      • Ch 5: Best Friends and Bouncers
      • Ch 6: Girls and Stuff
      • Ch 7: Theatre, Shweetie!
      • Ch 8: Go East!
      • Ch 9: This Sentence is Twenty
      • Ch 11: Hello Creativity
      • Ch 13: Blind and Dumb
      • Ch 14: Demons/Angels
      • Ch 17: Lord of the Ring
      • Ch 18: OMG
      • Ch 19: Love
      • Ch 20: ATM
      • Ch 21: Blood and Tears
      • Ch 24: Rings, Fingers and Noses
      • Ch 25: Woof
      • Ch 27: Hallelujah
      • Ch 28: Pictures, Pains and Polyps
      • Ch 29: Echo
      • Ch 30: ‘I’m All In’
      • Ch 31: Showtime
      • Ch 32: Two Steps Forward…
      • Ch 34: Caught by the Fuzz
      • Ch 35: Eyes Right!
      • Ch 36: Hormones
      • Ch 38: Building Blocks
      • Ch 39: ‘After the Break…’
      • Ch 40: The Fear, The Fame
      • Ch 41: Teeth and Tribulations
      • Ch 42: The Book of Clips
      • Ch 43: Super Sharp Shooter
      • Ch 44: Water and Fire
      • Ch 45: Life’s Little Challenges
      • Ch 46: Highs and Lows
      • Ch 47: Heartbreak and Heartache
      • Ch 49: The Power of Words
      • Ch 50: So Long, Old Pal
      • Ch 52: 183%
      • Epilogue
  • Buy
    • Audiobook
    • eBook
    • Paperback
  • Blog
  • Media
  • Support
  • Get in Touch

Category Archive

New Orleans Acromegaly Conference – 2019

Dan JeffriesApril 24, 2019Acromegaly, Advocacy, New Orleans, Rare Disease, Travel4 Comments

In March 2019 I was lucky enough to attend the International Acromegaly Conference in New Orleans. Here’s what went down in The Big Easy.

Ono Pharmaceuticals: Learning more about Acromegaly

Dan JeffriesFebruary 10, 2019Acromegaly, Advocacy, pharma, pituitary, Rare Disease2 Comments

It’s always an honour to be asked to share to experience and knowledge in Acromegaly. In January 2019 I spent the day at Ono Pharmaceuticals. Here’s what happened.

2017: A Year in Review

Dan JeffriesDecember 30, 2017Acromegaly, Advocacy, cambridge, Canada, CRDN, Rare Disease, Travel, wyburn-mason syndrome2 Comments

Dan book canada small 992x663 - 2017: A Year in Review

Two continents, five thousand miles, four conferences, numerous new friends and a couple of nosebleeds. It’s been the best 2017 ever for Dan Jeffries. Find out why.

Cambridge Rare Disease Network (CRDN) Conference 2017

Dan JeffriesOctober 24, 2017Acromegaly, Advocacy, cambridge, CRDN, pituitary, Rare Disease, wyburn-mason syndrome3 Comments

dj cambridge - Cambridge Rare Disease Network (CRDN) Conference 2017

Last month it was Canada, next week it’s Belgrade and yesterday it was Cambridge. OK, not quite as far away as the rest, but what an amazing setting for the Cambridge Rare Disease Network conference .

Canada West Acromegaly Conference: Friday

Dan JeffriesOctober 4, 2017Acromegaly, Advocacy, AVM, Canada, pituitary, Rare DiseaseLeave a Comment

Canada West Acromegaly Conference: Thursday

Dan JeffriesSeptember 21, 2017Acromegaly, Advocacy, AVM, Canada, pituitary, Rare DiseaseLeave a Comment

Canada West Acromegaly Conference: On my way!

Dan JeffriesSeptember 20, 2017Acromegaly, Advocacy, AVM, Canada, pituitary, Rare Disease1 Comment

Rare Disease Day Talk – Pfizer

Dan JeffriesMarch 21, 2017Acromegaly, Interview, pituitary, Rare DiseaseLeave a Comment

At the start of February 2017, I received an email from the Head of Patient and Family Services at the … Read More

When Dan met Sue Perkins

Dan JeffriesMarch 9, 2017Acromegaly, Bristol, Culture, Interview, media, pituitary, Rare Disease1 Comment

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© 2018 Copyright Dan Jeffries.
Chapter 4: QEH – The Early Years

Every child faces challenges at school. The first obstacle for me to overcome contained two of the most terrifying syllables in the English language: rugby.

For the first time in the school’s four-hundred-year history, a boy was exempt from playing rugby: and that boy was me. Doctors at the Eye Hospital felt that the vascular activity around my eye and brain was a serious enough issue that I shouldn’t engage in any contact sport. The fear was that this arteriovenous malformation (or ‘the worms’ as our family called them) could become damaged if I took a hit, and potentially cause bleeding in the brain. I think there were also concerns that somehow the syndrome could pass over to the other eye, or in some way damage the eye. I didn’t really understand — I just knew I would never experience the joy of a sticking my head between another boy’s legs.

Every child faces challenges at school. The first obstacle for me to overcome contained two of the most terrifying syllables in the English language: rugby.

For the first time in the school’s four-hundred-year history, a boy was exempt from playing rugby: and that boy was me. Doctors at the Eye Hospital felt that the vascular activity around my eye and brain was a serious enough issue that I shouldn’t engage in any contact sport. The fear was that this arteriovenous malformation (or ‘the worms’ as our family called them) could become damaged if I took a hit, and potentially cause bleeding in the brain. I think there were also concerns that somehow the syndrome could pass over to the other eye, or in some way damage the eye. I didn’t really understand — I just knew I would never experience the joy of a sticking my head between another boy’s legs.