Back in the Summer of 2015, I was casually browsing Facebook when I saw a post by a TV prodution company looking for ‘people with rare medical conditions’.
‘There’s not many rarer than me’, I thought and got in touch.
Amazingly, the production company were based in Bristol — and literally five minutes from my flat! Over the next couple of months we did lots of interviews and reconstructions in an attempt to tell my story.
The episode aired in April 2016 and you can view it on the Channel 5 website.